Caroline is a rare disease advocate who has Narcolepsy with Cataplexy, a neurological sleep disorder. Her brain doesn’t properly regulate the sleep-wake cycle, leading to chronic sleep deprivation, depression, terrible nightmares, and temporary paralysis from strong emotions. With treatment, she’s thriving. She is dedicated to raising awareness about symptoms to help others get diagnosed. Caroline is the Lead Youth Ambassador at Narcolepsy Network and speaks at conferences, and to doctors, teachers, and legislators about Narcolepsy and rare diseases. She is a freshman in American University’s Honors Program, where she majors in public health/biology. She plans to dedicate the rest of her life to research and advocacy in the rare disease community.

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